Nay Chi Khaing Zaw, just 25 years old, faces relentless challenges from lupus, fibromyalgia, and other chronic illnesses, yet she remains determined to do more than just survive her pain-filled days. Her journey highlights the unseen struggles of many young Singaporeans living with chronic pain.
- Multiple chronic illnesses cause severe pain and seizures
- Daily life requires careful planning and tough choices
- Shows courage balancing health, work, and friendships
What happened
Nay Chi Khaing Zaw contends with numerous chronic health conditions including lupus, fibromyalgia, hemiplegic migraine, hypermobility, and gastrointestinal problems. These illnesses bring intense joint and muscle pain, heightened sensitivity, and stroke-mimicking symptoms that limit her mobility and often trigger seizures.
Her pain is unpredictable and intrusive, affecting mundane tasks such as taking a shower or going outdoors. On a day she planned to sell her artwork at a market, she suffered a seizure just before reaching the venue but pushed through the agony to avoid losing the booth rental fee. This perseverance highlights the daily balancing act she endures between managing her health and maintaining her livelihood.
Why it feels good
Despite severe health challenges, Nay Chi finds joy in expressing herself through art and sharing her creations at markets. This purposeful engagement offers her a sense of accomplishment and connection beyond the confines imposed by her illnesses.
Her resolve to live beyond merely surviving pain demonstrates a powerful spirit. By adapting her environment and lifestyle, Nay Chi maintains hope and motivation, showing others with chronic conditions that a fulfilling life remains possible even when faced with ongoing health struggles.
What to enjoy or watch next
On The Red Dot’s series 'I Am Living With Pain' features Nay Chi’s story alongside two other young Singaporeans, exploring how chronic pain shapes their lives and hopes for the future. The documentary offers insight into the realities behind invisible illnesses and the courageous ways people navigate them.
Viewers interested in understanding chronic pain beyond the medical facts can watch 'Too sick for a nine-to-five job—How I survive with chronic pain,' a 33-minute segment that reveals the emotional and practical complexities of living and working with debilitating conditions.